| Title | Author | Year | Add to Folder |
| Community Knowledge, Beliefs, Attitudes, and Practices towards Children with Spina Bifida and Hydrocephalus in Uganda.
| Bannink, Femke
Stroeken, Koenraad
Idro, Richard
van Hove, Geert | 2015 |
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Title: Community Knowledge, Beliefs, Attitudes, and Practices towards Children with Spina Bifida and Hydrocephalus in Uganda.
Author(s): Bannink, Femke | Stroeken, Koenraad | Idro, Richard | van Hove, Geert |
Journal Details: International Journal of Disability, Development and Education v.62 n.2 p.182-201
Published: March 2015
ISSN: 1034-912X
Abstract: This article describes the findings of a qualitative study on knowledge, beliefs, attitudes, and practices towards children with spina bifida and hydrocephalus in four regions of Uganda. Focus group discussions and semi-structured interviews were held with parents of children with spina bifida and hydrocephalus, policy-makers, and service providers. The findings describe how negative knowledge, beliefs, attitudes, and practices create barriers to treatment and inclusion of children with spina bifida and hydrocephalus and their parents in Uganda. The findings show how knowledge, beliefs, attitudes, and practices evolve over time, are both similar and differ in the various regions, and become more conducive towards accessing treatment and achieving inclusion. Sensitisation and early intervention including parents and service providers in dissemination of knowledge, rehabilitative care to set the trend for positive change and support, as well as longitudinal studies of children with spina bifida and hydrocephalus and their parents are recommended. [Author abstract, ed]
URL (conditional access) : http://dx.doi.org/10.1080/1034912X.2014.998174
Record No: 206571 From EdResearch online
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| Perinatal risk factors for mild motor disability.
| Hands, Beth
Kendall, Garth
Larkin, Dawne
Parker, Helen | 2009 |
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Title: Perinatal risk factors for mild motor disability.
Author(s): Hands, Beth | Kendall, Garth | Larkin, Dawne | Parker, Helen |
Journal Details: International Journal of Disability, Development and Education v.56 n.4 p.317-331
Published: December 2009
ISSN: 1034-912X
Abstract: The aetiology of mild motor disability (MMD) is a complex issue and as yet is poorly understood. The aim of this study was to identify the prevalence of perinatal risk factors in a cohort of 10-year-old boys and girls with (n = 362) and without (n = 1193) MMD. The participants are from the Western Australian Pregnancy Cohort (Raine) Study. This longitudinal study, which started in 1989, recruited 2900 women at or before the 18th week of gestation from the antenatal booking clinic at a tertiary level obstetric hospital in Perth, Western Australia. Among the males with MMD there was a higher prevalence of postpartum haemorrhage, caesarean section, low birth weight and stressful first year of life. Among the females with MMD, there was a higher prevalence of essential hypertension, anaemia and threatened pre-term. Multivariable logistic regression revealed gender (male), anaemia, threatened pre-term birth (if female) and hypertension (if female) weakly explained MMD at 10 years. These results underscore the importance of considering gender differences in order to better understand the multiple influences on motor development. [Author abstract, ed]
URL (conditional access) : http://dx.doi.org/10.1080/10349120903306533
Record No: 179658 From EdResearch online
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| Assessing the prevalence and exploring the aetiology of intellectual disability in the early twentieth century : the experience of policy and practice in New South Wales.
| Williams, A. K. | 2003 |
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Title: Assessing the prevalence and exploring the aetiology of intellectual disability in the early twentieth century : the experience of policy and practice in New South Wales.
Author(s): Williams, A. K. |
Journal Details: Journal of Intellectual and Developmental Disability v.28 n.1 p.40-50
Published: March 2003
ISSN: 1326-978X | 1366-8250
Abstract: From the beginning of the twentieth century to the failure of the passage of the New South Wales Mental Defectives Bill in 1930, several investigations were conducted in an attempt to assess the prevalence of intellectual disability in the Australian community. During this period, 7252 people were admitted to state mental hospitals in New South Wales with a diagnosis of congenital or infantile mental deficiency, including the diagnostic subcategories of epileptic insanity and general paralysis of the insane. Using primary source material including annual reports of the New South Wales Lunacy Department, New South Wales Inspector General of the Insane Correspondence Files, and aggregated diagnostic data from patient case notes, this article discusses attempts to assess the prevalence of intellectual disability in Australia and more specifically in New South Wales during the period and attempts to attribute causation. Epilepsy and syphilis are discussed in terms of causation and correlation as specific co-morbid conditions associated with intellectual disability. [Author abstract]
URL (conditional access) : http://dx.doi.org/10.1080/1366825031000086885
Record No: 126145 From EdResearch online
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| Excessive picking in Prader-Willi Syndrome : a pilot study of phenomenological aspects and comorbid symptoms.
| Wigren, M.
Heimann, M. | 2001 |
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Title: Excessive picking in Prader-Willi Syndrome : a pilot study of phenomenological aspects and comorbid symptoms.
Author(s): Wigren, M. | Heimann, M. |
Journal Details: International Journal of Disability, Development and Education v.48 n.2 p.129-142
Published: June 2001
ISSN: 1034-912X
Abstract: Skin picking constitutes a minor diagnostic criterion for Prader- Willi syndrome and is considered to be a syndrome specific behaviour and part of a behavioural phenotype. This study surveyed different aspects and patterns of skin picking as well as related picking and pulling behaviours and compulsive and impulsive-aggressive symptoms. Parents of 37 individuals with PWS, aged 12 to 30 years, participated by completing questionnaires specially designed for the purpose of capturing specific features relevant to the clinical PWS picture. Two- thirds of the sample displayed skin picking with a frequency ranging from chronic to transient, episodic symptoms. Many individuals with skin picking also exhibited comorbid picking behaviours and individuals with excessive skin picking also had additional problems with frequent tantrums and violent outbursts. [ Author abstract]
URL (conditional access) : http://dx.doi.org/10.1080/10349120120053621
Record No: 109786 From EdResearch online
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| Simply a speech impairment? Literacy challenges for individuals with severe congenital speech impairments.
| Smith, M. M. | 2001 |
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Title: Simply a speech impairment? Literacy challenges for individuals with severe congenital speech impairments.
Author(s): Smith, M. M. |
Journal Details: International Journal of Disability, Development and Education v.48 n.4 p.331-353
Published: December 2001
ISSN: 1034-912X
Abstract: Individuals with severe congenital speech impairments frequently experience significant difficulties acquiring even basic literacy skills. It is likely that many factors, both intrinsic and extrinsic to the individuals, co-occur to influence success in literacy acquisition. This paper focuses on the extent to which a severe congenital speech impairment may affect the acquisition of phonological processing skills traditionally considered to be implicated in literacy success. Results on a lexical decision task are presented and discussed in terms of their implications for our understanding of the relationship between severe speech impairments, phonological working memory, and specification of phonological representations. [Author abstract]
URL (conditional access) : http://dx.doi.org/10.1080/10349120120094257
Record No: 113451 From EdResearch online
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| A novel application of a model of adult learning.
| Rae, J. | 1999 |
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Title: A novel application of a model of adult learning.
Author(s): Rae, J. |
Journal Details: Australian Journal of Adult and Community Education v.39 n.2 p.77-84
Published: July 1999
ISSN: 1035-0462
Abstract: The present study explores the applicability of an adult learning approach to genetic counselling. Analysis of four selected transcripts of genetic counselling sessions shows that Jarvis' contemplation learning model can be used to explore, discuss and understand the process genetic clients undergo. The application of models of adult learning to other areas of health care is also discussed.
URL (conditional access) : http://library.acer.edu.au/document/?document_id=97412
Record No: 97412 From EdResearch online
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| Angelman Syndrome : genetic mechanisms and relationship to Prader-Willi Syndrome.
| Smith, A. | 1994 |
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Title: Angelman Syndrome : genetic mechanisms and relationship to Prader-Willi Syndrome.
Author(s): Smith, A. |
Journal Details: Australia and New Zealand Journal of Developmental Disabilities v.19 n.4 p.259-267
Published: 1994
ISSN: 0726-3864
Abstract: Angelman Syndrome (AS) has been localised to a region on the proximal long arm of chromosome 15, bands q11-13, previously designated as the Prader Willi chromosome region (PWCR). Research points to two distinct regions within the PWCR, one for PWS and one for AS. There is currently no candidate gene for AS. Genetic mechanisms in Angelman Syndrome are complex. At present, three mechanisms are recognised: maternal deletion, paternal uniparental disomy and a nondeleted, nondisomic form. The importance of establishing the mechanism lies in the different recurrence risks which apply to each type.
URL (conditional access) : https://doi.org/10.1080/07263869400035301
Record No: 66373 From EdResearch online
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| Planning for young adults with brain damage in New South Wales.
| Ehrlich, F. | 1994 |
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Title: Planning for young adults with brain damage in New South Wales.
Author(s): Ehrlich, F. |
Journal Details: Australia and New Zealand Journal of Developmental Disabilities v.19 n.4 p.293-306
Published: 1994
ISSN: 0726-3864
Abstract: Adults with brain damage may have acquired it from three principal causes: from developmental disability or in very early life as a result of illness; in early adult life mainly from trauma, usually road accidents; and in late life due to dementia but also stroke and tumour. Whilst the resulting disabilities can be very similar, requiring comparable management strategies and causing similar stresses for their carers, there are very diverse avenues for service provision for these three categories, the only common feature perhaps being under provision. There may be a case for ' brain damaged persons unite' with the prospect of more rational provision of support.
URL (conditional access) : https://doi.org/10.1080/07263869400035351
Record No: 66378 From EdResearch online
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| Elimination of mental defect due to iodine deficiency by the year 2000.
| Hetzel, B. S. | 1993 |
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Title: Elimination of mental defect due to iodine deficiency by the year 2000.
Author(s): Hetzel, B. S. |
Journal Details: International Journal of Disability, Development and Education v.40 n.2 p.83-93
Published: 1993
ISSN: 0156-6555
Abstract: The WHO estimates one billion people to be at risk of iodine deficiency disorders of which mental defect is the most significant feature. Of these, 20 million are estimated to be suffering from some degree of preventable mental defect due mainly to the effects of iodine deficiency in pregnancy. The elimination of iodine deficiency disorders as a public health problem by the year 2000 has been accepted by the UN system at the World Summit for Children (1990) and the World Health Assembly (1990). In the light of the remarkable progress of national IDD control programs since 1985 there is justifiable confidence that this objective can be realised.
URL (conditional access) : http://dx.doi.org/10.1080/0156655930400202
Record No: 67370 From EdResearch online
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| Living with Tourettes: it's just a part of me.
| Rogers, S. | 1993 |
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Title: Living with Tourettes: it's just a part of me.
Author(s): Rogers, S. |
Journal Details: Youth Studies Australia v.12 n.1 p.14-20
Published: Autumn 1993
ISSN: 1038-2569
Abstract: Shannon Rogers, a Canadian student from the University of Victoria in British Columbia, spent two months in Tasmania last year doing the fourth year practicum for her Bachelor of Arts in Child and Youth Care. During her stay Shannon visited the Youth Studies Australia office and talked about her own experience as a child and as a young woman with Tourette Syndrome, and about her plans for a career in child and youth care.
URL (archived) : http://pandora.nla.gov.au/pan/147088/20140707-1245/www.acys.info/__data/assets/pdf_file/0019/65521/p14_-_S._Rogers_and_YSA_-_March_1993.pdf
URL (conditional access) : http://library.acer.edu.au/document/?document_id=64571
Record No: 64571 From EdResearch online
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| Prader-Willi Syndrome: quality of life issues in home, school and community.
| James, T. N.
Brown, R. I. | 1993 |
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Title: Prader-Willi Syndrome: quality of life issues in home, school and community.
Author(s): James, T. N. | Brown, R. I. |
Journal Details: Australia and New Zealand Journal of Developmental Disabilities v.18 n.4 p.253-260
Published: 1993
ISSN: 0726-3864
Abstract: Psychosocial aspects of Prader Willi Syndrome (PWS) can have a profound effect on individual and family well being, and often become home, school and community concerns. Quality of life considerations for parents and people with PWS are implicit in all aspects of syndrome management. Current quality of life research is reviewed and suggestions made for future research directions.
URL (conditional access) : https://doi.org/10.1080/07263869300035021
Record No: 62059 From EdResearch online
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| Objectively identifying the Cocktail Party Syndrome among children with spina bifida.
| Stough, C.
Nettelbeck, T.
Ireland, G. | 1988 |
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Title: Objectively identifying the Cocktail Party Syndrome among children with spina bifida.
Author(s): Stough, C. | Nettelbeck, T. | Ireland, G. |
Journal Details: Exceptional Child v.35 n.1 p.23-30
Published: March 1988
ISSN: 0156-6555
Abstract: Past research into the Cocktail Party syndrome has been hampered by inconsistent identification of children exhibiting characteristics of this syndrome. In the present study an attempt was made to objectively identify such children in terms of their speech, memory, vocabulary and attentive abilities. In a sample of 33 congenitally physically disabled children with similar cognitive abilities, cluster analysis identified four subjects with spina bifida and associated hydrocephalus as exhibiting the Cocktail Party syndrome on the basis of use of language irrelevant to a descriptive task.
URL (conditional access) : http://library.acer.edu.au/document/?document_id=38180
http://dx.doi.org/10.1080/0156655880350103
Record No: 38180 From EdResearch online
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| Fetal Alcohol Syndrome: a behavioural teratology.
| Kavale, K. A.
Karge, B. D. | 1986 |
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Title: Fetal Alcohol Syndrome: a behavioural teratology.
Author(s): Kavale, K. A. | Karge, B. D. |
Journal Details: Exceptional Child v.33 n.1 p.4-16
Published: March 1986
ISSN: 0156-6555
Abstract: The fetal alcohol syndrome represents a pattern of physical malformations observed in offspring of women who consume alcohol during pregnancy. Besides physical defects associated with in utero exposure to alcohol, serious cognitive deficiencies, mental retardation in particular, are now recognised as the most serious consequence of alcohol consumption during prenatal development. The purpose of the present review is to examine the literature that bears upon the behaviourally teratogenic aspects of alcohol; specifically, research focusing on the following issues is synthesized: prevalence of alcohol abuse among women; acute and chronic effects of alcohol on the fetus; genetic susceptibility; neuropathology; correlative conditions; and animal studies. Implications for the field of special education are considered throughout the review.
URL (conditional access) : http://library.acer.edu.au/document/?document_id=30292
http://dx.doi.org/10.1080/0156655860330102
Record No: 30292 From EdResearch online
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| Fetal Alcohol Syndrome (FAS).
| Westwood, P. S. | 1986 |
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Title: Fetal Alcohol Syndrome (FAS).
Author(s): Westwood, P. S. |
Journal Details: Australian Journal of Remedial Education v.18 n.2 p.20-21
Published: 1986
ISSN: 0726-5115
URL (conditional access) : http://library.acer.edu.au/document/?document_id=30023
Record No: 30023 From EdResearch online
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| The integration of eight Down's syndrome children into regular schools.
| Pieterse, M.
Center, Y. | 1984 |
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Title: The integration of eight Down's syndrome children into regular schools.
Author(s): Pieterse, M. | Center, Y. |
Journal Details: Australia and New Zealand Journal of Developmental Disabilities v.10 n.1 p.11-20
Published: March 1984
ISSN: 0726-3864
Abstract: Eight Down’s Syndrome children were integrated into regular classes in their local schools with specialist itinerant support after exposure to 3-5 years early intervention. Results of cognitive, academic and social measures indicated that the children functioned within the mild rather than the moderate range of mental retardation, and that they were within the range of variability tolerated in a regular classroom for social skills and for both oral reading and reading comprehension. On tests of mathematical achievement all but one child scored in the lowest percentile ranking. These results suggest that, following early intervention and with specialist support, Down’s Syndrome children can be successfully integrated into regular classes, at least until fourth grade primary school. The implications for school placement solely on the basis of IQ results and the need for maintenance of continuous data were also discussed.
URL (conditional access) : https://doi.org/10.3109/13668258409018662
Record No: 18835 From EdResearch online
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| Congruence between mother and handicapped child's view of the child's sense of adjustment.
| Harvey, D.
Greenway, P. | 1982 |
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Title: Congruence between mother and handicapped child's view of the child's sense of adjustment.
Author(s): Harvey, D. | Greenway, P. |
Journal Details: Exceptional Child v.29 n.2 p.111-116
Published: July 1982
ISSN: 0156-6555
Abstract: The responses of 22 physically handicapped children to selected items of the Piers-Harris Self Concept Scale for Children were compared with their mothers' responses to equivalent items of the Personality Inventory for Children. The direction of the responses, whether children were more or less positive in self-evaluation than mothers perceived them to. be, was analyzed with respect to sex of child, type of school attended, and diagnosis of handicap (cerebral palsy or spina bifida). Only diagnosis of handicap was significantly related to the tendency for children to be either less or more positive in response to the items than their mothers, with cerebral palsy children more positive and spina bifida children consistently less positive in direction. Possible explanations are considered, with particular reference to the children's views regarding peer relationships.
URL (conditional access) : http://dx.doi.org/10.1080/0156655820290206
Record No: 11450 From EdResearch online
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| Recognition, reproduction and recall in children with Downs syndrome.
| Stratford, B.
Metcalf, J. A. | 1982 |
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Title: Recognition, reproduction and recall in children with Downs syndrome.
Author(s): Stratford, B. | Metcalf, J. A. |
Journal Details: Australia and New Zealand Journal of Developmental Disabilities v.8 n.3 p.125-132
Published: September 1982
ISSN: 0726-3864
Abstract: 349 subjects were tested (118 Down’s Syndrome; 108 other mentally handicapped; 123 normal) in a simple discrimination task. The subjects were matched for M.A. which ranged from 2.5 - 7.0 in each group. The task was to match three cards, differing in size, with identical cards. On six occasions the cards were presented for each subject to match in open display; on six occasions the task was to arrange the matching cards from memory after the display was hidden from view. It was found that both handicapped groups tended to succeed in matching one card only, in position: whereas the normal group tended to succeed with the full array. Down’s Syndrome children tended to adopt a response bias, focusing on the central element displayed and to be more ‘content’ with monotonic orders and mirrored arrangements.
URL (conditional access) : https://doi.org/10.3109/13668258209018836
Record No: 12903 From EdResearch online
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